Ratings21
Average rating4.3
What is autism? A lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more—and the future of our society depends on our understanding it. WIRED reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years.
Going back to the earliest days of autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle, while mapping out a path for our society toward a more humane world in which people with learning differences and those who love them have access to the resources they need to live happier, healthier, more secure, and more meaningful lives.
Along the way, he reveals the untold story of Hans Asperger, the father of Asperger’s syndrome, whose “little professors” were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.
Reviews with the most likes.
I found the timeline of this book confusing, as it runs through a period of time, then circles back to the same period in other areas. Every time I think we're done with World War 2, we're back to the start again. Every time we near modern day, it's back to the 50s. I listened to the audiobook, which may have contributed to the confusion.
It's very interesting to learn how neurodiversity science developed and figuring out what exposure people of different ages would have had.
There's a lot to explore in the field of autism, and Silberman did a yeoman's effort for a complete layperson. There are so many misconceptions – such as the idea that “autism” is a single diagnostic entity, or that there is some explosion in people with autism, or that vaccines (or GMOs or gluten or the pseudoscience du jour) causes autism. So the idea that there could be a book to systematically explore autism and related topics was deeply appealing. However, this is not that book. Silberman's work is so uneven that it's hard to even analyze as a single volume. There are very intently focused parts (mostly, the history of Asperger, and the way in which he isn't a Nazi) and very shallowly explored parts. The use of illustrative individual case histories is helpful, but with such a shallow lens, people blend together.
Some key topics that Silberman touches on will be very interesting to people who have not been previously exposed to the issues: the fact that the autism spectrum is and has always been a spectrum; the intrinsic nature of autism to the personality of autists and the embracing of autism by many adult autists; the idea that “autism” is not necessarily a disorder, but that in many cases is a personality style that could be embraced and that the increased incidence of autism is almost completely accounted for by changing diagnostic criteria. Most of these topics have been widely explored elsewhere, and perhaps the most interesting: neurodiversity, is giving only glancing treatment by Silberman. Overall, the history portions were interesting and well done, and the rest would have benefited from more exposure to the topic.
I'm really conflicted about this book — it's very in-depth, well-researched and written in an engaging fashion. The author goes into exhaustive detail about the history of autism and Asperger's Syndrome ... but relegates the ostensible point of the book (neurodiversity, present and future) to what amounts to an extended epilogue. If you're looking for a comprehensive history of autism, you've found the right book. If you're looking for anything else, keep searching.
Essential reading. Autistic people will shape the 21st century, and this book tells a history.