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“A brave and illuminating journey inside the mind, heart, and life of a person with early-onset Alzheimer’s disease.”—Lisa Genova, author of Still Alice Wendy Mitchell had a busy job with the British National Health Service, raised her two daughters alone, and spent her weekends running and climbing mountains. Then, slowly, a mist settled deep inside the mind she once knew so well, blurring the world around her. She didn’t know it then, but dementia was starting to take hold. In 2014, at age fifty-eight, she was diagnosed with young-onset Alzheimer’s. In this groundbreaking book, Mitchell shares the heartrending story of her cognitive decline and how she has fought to stave it off. What lay ahead of her after the diagnosis was scary and unknowable, but Mitchell was determined and resourceful, and she vowed to outwit the disease for as long as she could. As Mitchell learned to embrace her new life, she began to see her condition as a gift, a chance to experience the world with fresh eyes and to find her own way to make a difference. Even now, her sunny outlook persists: She devotes her time to educating doctors, caregivers, and other people living with dementia, helping to reduce the stigma surrounding this insidious disease. Still living independently, Mitchell now uses Post-it notes and technology to remind her of her routines and has created a “memory room” where she displays photos—with labels—of her daughters, friends, and special places. It is a room where she feels calm and happy, especially on days when the mist descends. A chronicle of one woman’s struggle to make sense of her shifting world and her mortality, Somebody I Used to Know offers a powerful rumination on memory, perception, and the simple pleasure of living in the moment. Philosophical, poetic, intensely personal, and ultimately hopeful, this moving memoir is both a tribute to the woman Wendy Mitchell used to be and a brave affirmation of the woman she has become. Praise for Somebody I Used to Know “Remarkable . . . Mitchell gives such clear-eyed insight that anyone who knows a person living with dementia should read this book.”—The Times (London) “A landmark book . . . The best reward for [Mitchell’s] courage and candour would surely be fundamental changes in the way people with dementia are treated by society.”—Financial Times
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People have looked at my blog and questioned how I can possibly have dementia. They wonder how someone with a diseased brain can possibly write so fluently. I'm thankful that part of my brain isn't broken, that while words lose themselves on their way out of my mouth, the written ones make it on to the page before it's too late. It's sad when the things you continue to do make people question whether you have dementia. They're not inside my brain to hear or see the hallucinations. Would it make them feel better to see me on a foggy day, the type where I curl up under my duvet and hide away from the world? Would that make the disease fit better into the pigeonhole they've allocated it?
So many times reading this wonderful memoir, I wanted to give Wendy Mitchell a standing ovation for continuing to find ways to live well and happily, despite the system, her employers, and people around her doubting her. Really many gave up on her when she was only in the very early stages of early-onset dementia. The assumptions that her life is done, finished, do more harm than good. Wendy is down-to-earth, inventive and resourceful in how she copes. Now, do I think everyone can have such a positive attitude? Perhaps not, many wouldn't have the opportunity, but it's wonderful to see how Wendy again and again turns expectations on their head. Everyone should read this memoir; it teaches you not only about the experiences of someone living with dementia, but also how our important language is when talking to (or about) someone with a disability or illness. This book was also really well structured and put together, with the help of a ghostwriter Anna Wharton, and that makes it a very easy and enjoyable read. I will be recommending it to many and I wish Wendy all the best in her quest to make the most out of life. Fantastic!