The still point of the turning world

Like all mothers, Emily Rapp had big plans for her first and only son, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. Then Ronan was diagnosed at nine months old with Tay-Sachs disease. Not expected to live beyond three, Ronan would be stalled at a developmental level of six months. In this story of a mother's journey through grief and beyond it, Rapp shares the wisdom to be gained from parenting without a future.